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My Story as a Caregiver and Patient Advocate

This all started the day we heard the words, "This is better than the best-case scenario." You can go back to your life." I realized I no longer knew what our life meant. For almost two years, we lived in hospitals, separated from my husband and older son, focused entirely on helping our younger son, Viktor, recover. Everything else stopped. How It Started In November 2017, Viktor was diagnosed with Langerhans cell histiocytosis. His treatment lasted nearly two years and included chemotherapy, followed by long periods of waiting for his immune system to recover before the next phase could begin. Like many parents, I was suddenly thrown into a world I didn’t understand. I had no medical background, yet I needed to make sense of complex terminology, treatment plans, and decisions that affected my child’s life. Viktor during the treatment Learning Medicine Language One moment from the early days still stands out.  A nurse asked me to measure Viktor’s diuresis.  I didn’t eve...
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Valentinovo...

U poslednjem satu Dana zaljubljenih, uz šolju toplog čaja i misli o dragim osobama, moram podeliti koji red sa svim dovoljno strpljivim čitateljkama i čitaocima.
Gubitkom dragih osoba, naučila sam da volim, cenim i poštujem više one oko mene koji su tu, nije bitno koliko su blizu ili daleko. Naučila sam da vrednujem stvari, događaje i sitnice koje mi prijaju, da ugađam sebi onoliko koliko će biti dovoljno da budem zadovoljna... i mirna.
Ljubav možemo izraziti na različite načine, prema najboljoj drugarici, kolegi ili koleginici sa posla, detetu čijim se rođenjem vaš svet okrenuo naglavačke. Ručkom, čokoladom, šoljicom kafe, razgovorom, osmehom. Deliti emociju sa nekim je samo vaše iskustvo, onoliko vredno i bogato koliko mu pridate na značaju. Ali je vaše, treba da uživate u njemu. Bogati ste onoliko koliko prijatelja i prijateljica imate, ništa manje, ništa više. Zbog toga se ne treba ustručavati u pokazivanju emocija, već osmehom i poljupcom pokazati koliko vam neko znači. Kao što jedna od pesama Beatlesa kaže „All you need is love“.



Zaista, treba samo ljubavi, prema poslu, porodici, prijateljima, dragoj osobi... tada ste vi jači, veći, snažniji, tada imate volje za životom i energije za dostizanjem ciljeva u svakodnevnom i profesionalnom životu. Ako naučite da cenite sebe i druge, oni će vas takođe podržati. A život u jednini nije privlačan, nikako...
„Vodite ljubav, a ne rat!“

Tekst objavljen: 14.02.2012. godine
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Please be polite and concise. On this blog anyone opinion is appreciated, but we need to respect each other. If you like my direct response, feel free to write an email to empowera.consulting@gmail.com, and I will respond to you as soon as possible. Thank you in advance! Ana