Do you have the communication skills needed for rare diseases?
These past few months have been quite a ride. Since I left my previous job, I didn’t have a moment to stop and think, “What’s next?” Instead, I jumped straight into action, working on several projects without much time for planning, just rolling up my sleeves and implementing ideas. I’ve already shared some of these updates on my LinkedIn profile , but I’ve gathered them all here to see what’s been occupying my time and thoughts lately. I’d love your support—feel free to share these articles with anyone interested in patient advocacy. 🧭 If you’re a patient interested in Clinical Trials A new clinical trial map offers a simple, patient-friendly dashboard for locating clinical trials across Europe. For instance, here’s a link showing all the European sites researching Langerhans Cell Histiocytosis. ✨ You can search for ongoing trials by location and medical condition. 📌 Don’t miss my post from March to learn more about this helpful tool. 📢 Three Key Steps to Building Awareness...
