About plans and goals in future...
So let's start.
Are you making plans? Short-term, long-term.
Do you write down your goals and plan the steps to reach them?
Or do you follow your "charted" paths, expecting things to take place by themselves, and it's up to you to respond to the challenges?
This summer was busy for us, partly because we planned to create a podcast, and so in the fall and the new school year, we entered into the first joint project with our signature: we created the Rare And Share podcast, in which Dejan and I talk about rare topics with interlocutors who made laws, moved "mountains" for their loved ones, and did things you wouldn't expect "ordinary people" to be able to do.
Patient advocacy is neither easy nor simple. But it's rewarding!
Autumn will be dynamic, at least as it seems at the moment. At the end of the month, I am participating in a conference organized by Hrabriša - Lil` Brave One in Belgrade, and after that two more events:
- Conference about clinical trials, organized by the Rare Diseases Database in Novi Sad
- Annual Conference of European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria (ESPKU) in Seville.
All of this is happening because I write and speak out loud about the challenges and issues facing people with metabolic disorders, such as phenylketonuria.
NS Business Talks, Hotel "Sheraton", Novi Sad |
And because of that, I use the experience and knowledge that I have to exchange information, learn something new and expand the network of associates, maybe even friends who have solutions for these and similar problems.
Am I panicking about organizing time and travel? Maybe.
But at the same time, I am excited about the opportunities I have accepted and the possibility to help the community with rare diseases through my activism.
Patient advocacy is neither easy nor simple, but it is rewarding if I can contribute to improving the quality of life of patients or move things in that direction.
And that's what drives me to keep learning, working, and growing. This is what we teach our children, to be human, to help others and to be supportive of those who need it.
- What are your goals?
- Do you write them down?
- How many plans have you achieved this year so far?
Write them in the comments, I'm interested in reading them!
Love, Ana
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Please be polite and concise. On this blog anyone opinion is appreciated, but we need to respect each other. If you like my direct response, feel free to write an email to zakomplikovana@gmail.com, and I will respond to you as soon as possible. Thank you in advance! Ana